Policy Advisory Panel On Access To Medicines
The Policy Advisory Panel on Access to Medicines, comprised of CF health experts, helps us drive our strategic priority of advocating for equitable access to prescribed therapies for every Canadian coping with cystic fibrosis. The volunteer advocacy panel provides invaluable guidance and professional support to Cystic Fibrosis Canada. The panel contributes to key submissions in the drug review and approval process, and provides critical advice about emerging issues, trends, challenges and opportunities regarding access to medicines.
CF Advocates can have a significant impact on the way CF issues are addressed in Canada by all levels of government. There are three CF Advocate roles: Provincial, District and Network.
Provincial Cf Advocates
Provincial CF Advocates serve to implement the goals and objectives of the National Advocacy Program. They identify provincial- and territorial-specific advocacy priorities and together with Cystic Fibrosis Canada, develop strategies to address these priorities. Provincial CF Advocates will build relationships with elected and appointed officials in order to increase support for the programs, services and policies that can improve the quality of life for people with cystic fibrosis. Each of the Provincial Advocates coordinates advocacy efforts and builds volunteer advocacy capacity for the province they represent.
Our current Provincial CF Advocates are:
- Christine (Chris) Black – British Columbia
- Paul Pryce – Alberta
- Cori Carey – Saskatchewan
- Tim McKay – Manitoba
- Erick Bauer and Stefanie Cali – Ontario
- Denis Mouton – Quebec
- John Bennett – Newfoundland and Labrador
- Bob Fortier – Nova Scotia
- Melvin Jay – Prince Edward Island and New Brunswick
District Cf Advocates
District CF Advocates send regular messages to their local elected and public officials in order to increase support for the programs, services and policies that will benefit Canadians affected by cystic fibrosis. They also attend at least one meeting each year with their local legislators.
Network Cf Advocates
Network CF Advocates correspond with their local elected and public officials in order to increase support for the programs, services and policies that will benefit Canadians affected by cystic fibrosis, and build capacity on a grassroots level with the local CF and volunteer community.
For more information on becoming a CF Advocate, please visit the Take Action Now page.
Thanks to the support of patients and families, dedicated clinic teams and committed government officials, we’re making a difference in CF care and access to medicines. Our recent successes include:
- The development of a Patient Group input submission for KALYDECO® that led to a positive Common Drug Review recommendation
- Successfully advocating for CF newborn screening in Manitoba and Nova Scotia